The Photographers for Good foundation are compiling some of the best photography you’ll see anywhere into a book to help save a 4-year-old girl from her degenerative disease, Sanfilippo.
The charitable collective is releasing the third volume of its Plus One Collection, named for their Google+ connections. See the ongoing collection here This edition’s mission is Eliza O’Neil from Columbia, South Carolina.
Suffering from Sanfilippo, Eliza will likely “lose the ability to speak within 6 months and suffer irreversible brain damage within a year and a half,” according to the fundraising site. If she goes without surgery, Eliza may not make it to her teens. Eliza's fundraising site here
Photography for Good’s ambitious aim is to raise $30,000 in 30 days, that money will go towards publishing the book. Donations to their IndieGoGo campaign will be rewarded with the collection’s Ebooks, prints and hard copy books. The campaign will end September 27. Campaign here
Though the Plus One Collection accepts photos from anyone, regardless of their clout, it’s clear from their publication they only publish the highest quality pictures.
The foundation hopes to net $15,000 from the book’s sales and donate it to Eliza’s fundraising endeavour, which at the time of writing, has reached $1.1 million out of its $1.8 million goal.
“Right now Eliza is a fun loving 4-year-old who loves to sing, run and MOST of all, cuddle. She loves to play dress up and horse around with her rowdy big brother Beckham.” Reads the description on the Go Fund Me site. “She is, however, beginning to show signs of the disease in her learning and attention. And if nothing changes, it will only get worse from here.”
The fundraising site for Eliza is part of a broader non-profit intent on curing Sanfilippo and states they have no paid employees and don’t use the money for personal medical expenses.
“As the disease continues to tear through her brain and body, she will lose the ability to walk and eventually she won't even be able to feed herself as seizures ravage her body.” The description reads. “The trial is lacking funding to make the medicine, administer the treatment, and remain on schedule, and every moment counts as Eliza approaches the tipping point when her disease will take an irreversible turn for the worst.”
Treatments for Sanfilippo syndrome are largely “supportive” meaning they don’t cure the crippling affliction they just stave it off. The surgery Eliza will undergo is a “breakthrough” experimental gene therapy treatment.
In its two past editions, Photographers for Good have donated their proceeds to the micro-loan non-profit, Kiva, and a Christian charity doing work in Kenya, The Kilgoris Project.